TREATMENT

Because of your monthly gifts, families and individuals can focus on healing, and not worry about how their going to afford out-of-pocket treatments— because all a family or a loved one should worry about is the healing process of getting healthy, and building up their immune systems. So instead of worrying about the cost, people with severe chronic Lyme can focus on getting better.

What We Do

Your LymeLilli donations provide Testing & Treatment assistance options for children, pets and adults suffering with Lyme disease and Co-Infections. We work with your treating physician (Lyme Literate doctor or Medical Doctor).

We provide, depending on the Level of Care needed, assistance in the varying stages of the disease.

Donations are applied in these 3 Easy steps:

  1. Testing with Igenix (ordered by an LLMD | Physcians office)
  1. Ultimate Lyme Support System through the “Donate a Box for Detox” program
  1. Financial assistance at a Treatment Center or In Home Care for severe chronic Lyme cases

So, whether its catching the disease in its early stages and needing a test, or boosting your immune system with the Ultimate Support System Program, or needing Late Stage Treatment at a Lyme specialists office or center.

Your donations help restore health by opening up unaffordable options plans.

Igenex uses more than one strain of the bacteria as the basis of their test, and, they are the only laboratory that uses a human derived strain as opposed to a tick derived strain.  This human strain may be significant as to why more people are improving after a positive Igenex test, followed by proper treatment.

LymeLilli Quick Tip: Learn to read your Igenix tests, and look at the positive bands and the IND bands. (see below on how to read the bands)

**IND = inconclusive. Inconclusive doesn’t rule out that band to Lyme Literate doctors, especially if your symptomatic. You also may have tested when the disease isn’t active. So, always get a copy of the full report.

IGM = current & active infection     |     IgG = past exposure to infection | past infection

KDA Western blot (9 known bands)of Borrelia Burgdorferi (Lyme): 18 23 30 31 34 37 39 83 93

The Lab marks each band with intensity symbols:

–     No Present detection    

+     Low detection

++   Medium detection

+++ High detection

+ | – Equivocal IND ( somethings there, but detection not strong enough to register + )

READING RESULTS FROM IGENIX TEST:

18   LLMD’s say if this band is present is a positive, and you have Lyme  

9     Cross reactive for Lyme12   Specific for Lyme

12    Specific for Lyme Bb

20     Specific for Lyme Bb

21     Unspecific

  • Specific for Lyme (Bb)

23-25 OspC outer surface protein specific for Lyme

28      Unspecific

30       Unspecific Common in California strain (could be from other viruses)

31       OspA outer surface protein (Other viruses causes possibly)

34       Specific for Lyme Bb (outer protein)

35      Specific for Lyme

37       Specific for Lyme

38       Cross reactive for Lyme

39       Major Lyme flagellin

41      Flagellin protein of all spirochetes, 1st to appear after infection, other spirochete diseases not Lyme

45, 50, 55, 57, 60 Cross reactive for Lyme Borrellia

58         May be a Heat shock Lyme Bb protein

66         Common in all bacteria | reactive to Lyme

83         SPECIFIC TO LYME BACTERIA CYTOPLASMIC MEMBRANE

93         SAME AS 83 BAND JUST MIGRATES IN PATIENTS DIFFERENTLY

The CDC includes 5 non specific antibodies in the Western Blot. Criteria is 28, 41, 45, 58, and 66

This leads to false positive Lyme Western blot results.

THE COST OF LYME CARE

Lyme Disease can cost on average a patient $65K per year of out-of-pocket expenses such as testing, doctor visits with an LLMD, pharmaceuticals, and supplements.  Insurance coverage is limited by guidelines, leaves many costs uncovered such as long term, “chronic”.

There is enormous controversy surrounding the diagnosis of “chronic Lyme disease”. This state of controversy also applies to the disease’s treatment. There are two standards of treatment when it comes to Lyme disease: the first says that treating Lyme disease with 28 days of antibiotics will cure a patient regardless of how long they’ve been infected.

The alternative says Lyme eventually turns into a chronic condition, which requires comprehensive, long-term treatment.

The equality of life is highly impacted.  Lyme patients who are either the primary provider for their family, or a family member, are unable to pay for the costs leading them to either become too sick to work, so they lose their jobs, go into financial debt, or they don’t even get treatment because they can’t afford the added extra expenses on top of daily living costs.

TREATMENT OPTIONS VARY FOR TACKLING LYME DISEASE:

Ozone Therapy | provides many powerful and healing health benefits with little or no side effects

  • Improves circulation by enhancing the flow of your blood;
  • Works as an immune modulator, by helping your immune system
  • Ozone Kills viruses, bacteria and yeast by suppressing infections
  • Increases the uptake of oxygen by stimulating the enzyme DPG (diphosphoglycerate), which helps the cells get all the oxygen they need to function properly. This aids in killing resistant, anaerobic infections and provides the cells in the area with the extra oxygen needed to heal.
  • Stimulates mitochondria increasing the cells’ energy
  • Stimulates white blood cells to produce immune-related messenger molecules called cytokines
  • Ozone helps blood flow better
  • Increases antioxidant protection
  • Oxidizes toxins.
  • Beneficial for Liver support

Autohemotherapy is one of the most common and effective ways Ozone Therapy is conducted.

This process involves the removal of 6-12 ounces of blood via a sterilized system which is then contained in a sterilized container. Once the blood is collected, ozone is injected into the container; the container and the blood are mixed together gently, allowing the red and white blood cells to take up the ozone. The ozonated blood is then returned to the body via the sterilized delivery system. The entire process takes often less than 1 hour, ozone clinics may vary.

HBOT (Hyperbaric Chambers) For Lyme Disease Treatment | Lyme disease causes an oxygen deficiency

The usual first course of action after detection of Lyme disease is a month of antibiotics.

The medical community has also studied treatment through hyperbaric oxygen therapy (HBOT). During HBOT sessions, the body is flooded with oxygen at higher than normal pressure. This flood of oxygen helps promote healing, restore many functions within the body and provides a boost to the immune system.

Lyme patients who received HBOT may experience a Herxheimer (herx) reaction, which also often appears with aggressive antibiotic therapy. This reaction is a passing but sudden high fever that results as the bacteria that cause Lyme disease die. But after the reaction has passed, patients who receive HBOT experience pain relief, a boost in energy level, improved cognitive functioning and normalized functioning of the glands and organs.

CRYOTHERAPY

Research has shown beneficial results to aid in treatment of depression, anxiety, insomnia, MS, psoriasis, fibromyalgia and chronic conditions such as Lyme disease.

By getting the blood flowing from your extremities to your core and in the process, releases endorphins stimulating the body in a very short period of time, by exposure to the low temperatures cryotherapy accelerates the healing of soft tissue, alleviates joint pain, and increases metabolism, Inflammation, bruising, and muscle fatigue improve tremendously.

PK (Patricia Kane) PROTOCOL | IV DRIP TREATMENT

The Patricia Kane protocol, often called the PK protocol.

Three part program to treat: Amyotrophic lateral sclerosis (ALS) and other Neurological disorders. It includes multiple daily infusions of intravenous (IV) phosphatidylcholine (often referred to as PC or PhosChol) and glutathione, a special nutrient-dense diet that limits the intake of carbohydrates and oral supplements. The PK Protocol given by a LLMD, usually is a 20 week program, for 2 hours, once a week.

This is an out-of-pocket expense, and costs around $2,500.00 and up.

The PK Protocol aids in regeneration of the cell membrane to treat Neurotoxicity in order to treat the following:
-ALS, Motor Neuron Disease
-Alzheimer’s
-Anti-Aging, Longevity
-Autism and Developmental Delay
-Cancer
-Cardiovascular Disease
-Chronic Fatigue Syndrome
-Environmental Illness
-Epilepsy
-Infertility
-Heavy metal detoxification
-Hepatitis C
-Huntington’s Disease
-Hyperlipidemia (elevated cholesterol, LDL, triglycerides)
-Inherited Metabolic Disorders
-Lyme Disease
-Mold Toxicity
-Multiple Sclerosis
-Neuro Lyme
-PANDAS
-Parkinson’s
-Post Stroke
-Neurotoxicity
-Pesticide/Chemical Poisoning
-Seizures

Background: The lipid soluble nature of toxicity has led us to seize the complexity of neurological presentations by addressing them from a cell membrane perspective. Examination of red cell lipids and identification of nuclear DNA adducts as chemicals, pesticides, microbials and metals in subjects with Motor Neuron Disease, Autism, Multiple Sclerosis, Post Stroke, Epilepsy, Alzheimer’s and  Parkinson’s Disease over the past eleven years in 9000 analyses has revealed a characteristic accumulation of very long chain fatty acids (VLCFAs), which comprise lipid rafts, or ceramides, revealing cell membrane derangement. Membrane phospholipid abnormalities with elevation of VLCFAs may be indicative of exposure to fat soluble neurotoxins resulting in suppressed peroxisomal beta oxidation of VLCFAs. Disturbances in methylation due to toxic exposure may destabilize the membrane phospholipid structure and alter DNA expression due to deficits in the enzymes Methylene Tetrahydrofolate Reductase (MTHFR) and Methionine Synthase.

Objective: The use of oral and IV lipids may facilitate stabilization of phospholipids in cellular membranes thereby addressing cell membrane integrity. The addition of intravenous phenylbutrate addresses neuroinflammation by increasing the beta oxidation of VLCFAs.

Procedure: To clear the bioaccumulation of toxins and stabilize membrane function we have embarked on a clinical treatment plan for the past  five years to address the accumulation of aberrant lipids and ceramides with oral and IV phenylbutyrate, bolus intravenous phosphatidylcholine as Essentiale, methylation factors (folinic acid, riboflavin, methylcobalamin, tetrahydrobiopterin), and sulfation support (IV Glutathione).

The PK Protocol was personally used by the Founder of LymeLilli for Neurological issues she had developed six months after the tick bite.

ULTIMATE LYME DISEASE SUPPORT SYSTEM | RESULTSRNA

The Ultimate Lyme Disease Support system heals and rejuvenates while minimizing herxheimer reactions. Colloidal Silver Kills More Than 650 Diseases                                 

Colloidal Silver has been medically proven to be the best infection-fighting agent ever discovered.  Colloidal Silver kills more than 650 known pathogens.

Colloidal Silver has been used successfully against: acne, arthritis, blood parasites, blood poisoning, cancer, candida, hepatitis, impetigo, indigestion, leukemia, lupus, Lyme disease, malaria, parasitic infections, viral, fungal and bacterial pneumonia and canine parvovirus a veterinary use, and fungal and viral attacks on plants.

The reason why colloidal silver does not react with the body in a negative manner is because the body actually requires a certain amount of silver for regeneration of tissues and the replacement of special cells. Not only is colloidal silver safe to use on its own but it also does not react adversely when used in a combination therapy with other conventional medicines. Following the positive results of the UCLA medical tests on colloidal silver its use has flourished on a wide scale level.

  • ACS200 Silver Extra Strength achieves 99.9999% (complete) kill against Borrelia burgdorferi, and co-infection microorganisms Powassan virus, MRSA, and more without harming healthy flora or damaging human tissue. Prescribed by Lyme literate doctors worldwide.
  • ACZ NANO Extra Strength: Lyme pathogens require a toxic host to survive. Boost your immune system and achieve long term health by cleansing your body of immunocopromizing toxic heavy metals and more.
  • ACG Glutathione Extra Strength: Neutralizing free radicals and reactive oxygen compounds, increased glutathione enhances every system of the body, including the immune system and metabolism.
  • Neuro Care Extra Strength: Neurological System Rejuvenation | Neuro Care Extra Strength effectively reduces neurological manifestations associated with Lyme disease.

 

The Ultimate Lyme disease support system was, and still is personally used daily by the Founder of the LymeLilli Foundation.

PLEASE NOTE:

You and your doctor will discuss all treatments and therapies that are right for your condition. While different options can be very effective, it should not be thought of as a cure. A treatment protocol that can make the difference between success and failure, however it is most effective when it is used as part of an integrative treatment plan, which includes testing, nutrition, hormone optimization, detoxification, and other therapeutic modalities.

Part of one’s success with a protocol may not be for someone else. That is why there are so many options when treating Lyme disease and its Co-infections. The beauty of the Lyme community is that we share what has worked or what hasn’t. Each person’s treatment varies depending on their personal preferences, and physicians recommendations.

There are so many treatment options out there, and we will be updating this information periodically.

MEDICAL RECORDS TIP

Helpful LymeLilli Tip: Buy a Three Ring Binder and a whole puncher, to keep track of your Lyme disease history, test results, receipts and treatments. You may want to include:

  • A directory of contact info. for your health care team
  • Insurance information for doctors that provide codes for insurance claims
  • Medication lists
  • Pharmacy contact info.
  • Other medical info.
  • Calendar to help plan and keep track of appointments
  • Blank paper to write down questions and answers or to record any side effects you are having or other information for your health care team
  • Decorate it with a Quote that Inspires you

TESTING

The FDA permits the marketing of tests that do not have FDA approval.

What that means is that physicians and insurers won’t accept Non-FDA approved tests. Meaning patients will need to pay for these tests out-of-pocket.

IGENIX

For those that qualify, we will cover the Complete Lyme Panel test from Igenix Labs.

The initial panel to order for Lyme disease is the Complete Lyme Panel.

The Complete Lyme Panel includes the IFA, Western Blots and PCR. The IFA (Immunofluorescent Assay) is a screening test for antibodies against Borrelia burgdorferi, the causative agent of Lyme disease.

The Western Blot tests determine the specific type of anti-B. burgdorferi antibodies an individual makes. The PCR tests detect B. burgdorferi-specific DNAs.

6050 – Complete Lyme Panel**:
Includes Test:

230 Lyme IFA**
188 IgM Western Blot
189 IgG Western Blot
453 Lyme PCR, serum
456 Lyme PCR, whole blood

FOR NY RESIDENTS:

5010 – Initial Lyme Panel:
Includes Test 188 IgM Western Blot
189 IgG Western Blot
453 Lyme PCR, serum
456 Lyme PCR, whole blood

POLICY

Only your physician is able to request, change, or cancel tests. Once the test results have been released, testing can not be cancelled.

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